Gorham's Disease or Massive Osteolysis - Supporting those affected by this rare condition. From the AFAS Association. Available in English, French, and Spanish.
Jake Moore Memorial Site - Personal page about a young man who had vanishing bone disease. Offers a support forum.
The Lymphangiomatosis Foundation - Organization working on finding a cure for lymphangiomatosis and Gorham's disease through research, fundraising, and education.