• IFOPA - International Fibrodysplasia Ossificans Progressiva Association - Support group for families. Information about the condition, treatment, and research efforts.
• McKay Orthopaedic Research Laboratory - Summaries of current research projects at the University of Pennsylvania.

• SFGate - San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients. (May 31, 2005)

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